This is Izzy, the daughter of Flite's VP of Product Design. We are honored to join her on May 5th, 2012 as part of TEAM IZZY for a bike ride in RideAtaxia Norcal to raise awareness and funding for Friedreich’s Ataxia Research Alliance (FARA).
In July 2010, Izzy was diagnosed with a rare neurodegenerative disorder named Friedreich’s Ataxia (FA). FA is a life-shortening genetic disorder which afflicts about one in 50,000 people. The average age of death is in early adulthood. Izzy’s symptoms began at age 5 and she is already using a wheelchair 75% of the time. She suffers from scoliosis and moderate cardiomyopathy (thickening of the heart). At this time there are no effective cures or treatment for FA, but we do have hope.
FARA - The Friedreich’s Ataxia Research Alliance is supporting research that will improve the quality and length of life for those diagnosed with FA and will lead to treatments that eliminate its symptoms. This year was a very exciting year for FA research as several clinical trials for drugs that may slow, stop and eventually reverse the effects of FA have begun! FARA funded research is also providing insight into curing other neurodegenerative diseases that share common mechanisms such as ALS, Parkinson’s, Huntington’s, and Alzheimer’s. Due to the relatively small population affected by FA funding through traditional sources has been limited.
For more info on Izzy, please visit: hopeforizzy.com
For further information about FARA, visit www.curefa.org
FARA is a 501(c)(3), non-profit, tax-exempt organization. Contributions are tax-deductible. (Tax ID#52-2122720)